Following on from the successful BPNS instigated study of GBS linked to COVID-19 infection - whhich found no evidence that COVID is a significant trigger for GBS, te society is now encouraging a similar collaborative study of GBS following COVID vaccination (any vaccine). Details can be found in the members pages - HERE (login to access)
Tuesday 4 – Wednesday 5th May 2021
2021 will see our conference move online for the first time. This is a 2-day virtual clinical course on childhood and adult neuromuscular disorders covering a range of disorders including Duchenne’s muscular dystrophy (DMD) and other muscular dystrophies, spinal muscular atrophy, (SMA), neuropathies, myopathies, channelopathies and mitochondrial disorders. This year there will be a particular emphasis on transitional diseases i.e. diseases which start in childhood but need to be managed throughout life including DMD and SMA. Recent advances in therapies for these conditions will be covered.
This 2-day course is designed for paediatric and adult specialists with an interest in neuromuscular diseases. Programme to follow shortly.
BPNS face-to-face outpatient policy
Agreed at BPNS AGM, 6 November 2020, amended 16 January 2021. The latest version of this policy can now be found in the new 'Policies' page under 'About' on the society home page.
The BPNS sees no reason for any patient with any peripheral nerve disease to avoid having any of the COVID-19 vaccines. A commentary on the topic my Mike Lunn can be found HERE. An information sheet giving the Societys official view for concerned patients is HERE.
BPNS members have contributed to an important study led by Stephen Keddie and Mike Lunn showing no association between COVID-19 and GBS. <Link>
The COVID-19 epidemic raises some questions for patients being treated for neuromuscular disease. The following documents and links may help:
Guidance regarding immunosuppression - (Mike Lunn / Queen Square)
A top quality international master class in peripheral nerve biology and disease based in Milan, Italy. The course involves five separate modules each of one week duration spread throughout a year.
The BPNS is delighted to announce the Richard Hughes bursaries in honour of Professor Richard Hughes, the first president of the BPNS. These comprise up to three travel bursaries a year, two to help fund a trainee to travel to the international Peripheral Nerve Society (up to £500 each) and one (up to £300) to attend the Spring meeting of the Association of British Neurologists (ABN).